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FIBROMYALGIA AWARENESS

Posted on May 19th, 2011 in Fibromyalgia

A video i made in 2006 to help raise awareness.

Tags: Awareness, Fibromyalgia

25 responses to FIBROMYALGIA AWARENESS

livelovelaughinNY
Comment on FIBROMYALGIA AWARENESS (May 19th, 2011 at 08:02)

What a wonderful video! Great Job and thank you for brining awareness to this! A lot of times this is used a “throw away” diagnosis and that is terrible! AWESOME JOB! may all that are affected be blessed with peace and comfort!
ValkyrieRaven
Comment on FIBROMYALGIA AWARENESS (May 19th, 2011 at 08:51)

Thank you for putting this video together. I’m very fortunate that everyone in my support network (including my doctor) fully believes in FM, but a lot of other sufferers aren’t as lucky. Peace.
swanhildatork
Comment on FIBROMYALGIA AWARENESS (May 19th, 2011 at 09:22)

thank you for posting this video.
teleharrier
Comment on FIBROMYALGIA AWARENESS (May 19th, 2011 at 09:56)

Mark Emmins is Due to release a single ” MISSUNDERSTOOD” to help raise awareness .. look out for it .. its a heart hitting song !
coyne12543
Comment on FIBROMYALGIA AWARENESS (May 19th, 2011 at 10:22)

Well done – thank you for making this video.

For those with FM and other “invisible illness” – try to find moments each day to self-soothe if possible.

I listen to meditative music and now have a pajama wardrobe – laughter helps me too!

Best wishes to all.
AnimaStellarum
Comment on FIBROMYALGIA AWARENESS (May 19th, 2011 at 10:22)

Thanks for this video, Purpleflyer! This is one of the best I’ve seen for fibro awareness. It’s very inspiring!

Curlyperm2: My understanding is that fibromyalgia has been around for a long, long time, but it was never recognized because it’s only physical manifestations are neurochemical. Even after researches were able to detect neurological causes for things better, fibro wasn’t considered for a long time because it had been discounted by the medical community. Finally, a cause is found.

FIBROMYALGIA AWARENESS
curlyperm2
Comment on FIBROMYALGIA AWARENESS (May 19th, 2011 at 10:48)

is funny how this fibromyalgia, like cancer and other new diseases were hardly heard of years ago….maybe its all the crap they are putting in our food, like aspartame…GMOs…Flouride in the water…ect….
And also all these vaccinations we have had since a child…they have increased greatly…im just thinking there could be a link???…
i have had FM since a child!!!!
serenaef
Comment on FIBROMYALGIA AWARENESS (May 19th, 2011 at 11:26)

i have 28 of those symptoms and doctors just tell me that It is all in my head. nice to see some people trying to find a cause
KlaraLudwika
Comment on FIBROMYALGIA AWARENESS (May 19th, 2011 at 11:52)

having this since 13 years old sucks.
I’m 16 now *recently diagnosed* and it sucks to think that I’ll be ill more in my life than I will be healthy. I hate this disease. It’s ruined my life.
Only when we are taken seriously, will we ever get the help we need.
caring1100
Comment on FIBROMYALGIA AWARENESS (May 19th, 2011 at 12:19)

We need to get on a show that will acknowledge what this is all about, I have every symptom mentioned in your video, it goes through the whole body. I go to the hospital and they thing I’ m crazy, or a drug addict that wants another fix, when I don’t even want to take any meds at all because of the way it makes me feel. Thank you for the video…Let’s hope that help comes for us soon.
Hollys4angels
Comment on FIBROMYALGIA AWARENESS (May 19th, 2011 at 12:31)

This video say’s it all. I am 47 and nothing seems to help.. I felt like I was losing my mind also. It is hard to explain how this disease takes over your Life.I have had a hard time coping but, with a wonderful Husband’s support it helps. We try and grab every good minute we can.
I don’t know what I would do without his support.
nr900
Comment on FIBROMYALGIA AWARENESS (May 19th, 2011 at 12:56)

Thanks for the excellent video. I agree that people often dont understand it, and dont take it seriously. Its difficult not to get bitter and angry about the whole thing. Videos and articles like this help ALOT. Thanks, and good luck to anyone who is experiencing these symptoms.
lilmissgemm
Comment on FIBROMYALGIA AWARENESS (May 19th, 2011 at 13:54)

Fantastic video! Thanks for doing this! I have posted it on my facebook profile to try and make friends understand why ive been down recently,since having a flare up! I have had fibro now for 2 yrs,im a single parent to a very active 7 year old,and after giving up work 2 yrs ago,i have recently gone back to college,only PT to get me out the same 4 walls,it dosent take the illness away, but i guess we still have to try and get on with it!We just HAVE to cope,Love to anyone who`s suffering xx

FIBROMYALGIA AWARENESS
noskegirl
Comment on FIBROMYALGIA AWARENESS (May 19th, 2011 at 14:22)

Its not a Disease, Its a syndrome.. apparently. Dammit I wish there was one definition we could all look too and we could all get better. I hate it, I hate it!!!
noskegirl
Comment on FIBROMYALGIA AWARENESS (May 19th, 2011 at 15:06)

Hey, Im 20 and was diagnosed with Fibromyalgia/chronic fatigue after 2years of going through every other test known to man. It really really sux!! I cant work anymore or do anything. Ive had to give up on all the things I love doing. Im useless and no one listens or takes me seriously. My medication makes me unco and people laugh at me when I walk into things. I feel hopeless, I dont know what to do anymore. I cry everyday.. I want to work, I want to do the things I love. I Dont want to be sick!

FIBROMYALGIA AWARENESS
glabutis37
Comment on FIBROMYALGIA AWARENESS (May 19th, 2011 at 15:45)

I love this video. Im 38 and have fibro for about 6 yrs now. I lost my good job as a loan processor at a bank.
There are things you can do for it. Pain meds, getting exercise, walking is best for me.
I have been tring to get back to work part time now for 2 yrs with no luck, so I started college for graphic design. Im taking 2 classes this semester. Hopefully I can work from home when i graduate….. work around the rare times i get a “major” flare up.

FIBROMYALGIA AWARENESS
purpleflyer360
Comment on FIBROMYALGIA AWARENESS (May 19th, 2011 at 15:53)

Yes! go back and give them a mouthful, they need to be educated on this disease! The more we stand up to them and tell them about it the more people will start to take this disease seriously! Good luck to you and your mum!
scarfacescarface69
Comment on FIBROMYALGIA AWARENESS (May 19th, 2011 at 16:15)

Thanks for the vid, my mum has been diagnosed with fibromyalgia and i have exactly the same symptoms. unfortunately though the doctor constantly puts it down to my weight which is ridiculous to be disregarded for this reason. Think i may go back and give them a mouthful now! Many thanks
medicalmarijuanapait
Comment on FIBROMYALGIA AWARENESS (May 19th, 2011 at 17:13)

I have fibro as well, I was diagnosed when i was seventeen, I started 100mg morphenes and became severly incompasitated. Now I’m a medical marijuana patient with an authorization for medical marijuana from my primary care doctor, nothing else has helped at all! My family dosn’t understand or care enough to take the time to understand.
koowley
Comment on FIBROMYALGIA AWARENESS (May 19th, 2011 at 17:45)

Hey hi I want to thank you for this video. I’m positive now that I have this ‘syndrome’(?) My doctor told me two years ago. And latley I’m having such odd systoms and now thanks to you and others I realize that I’m NOT losing my mind. I could have written the book on these symtoms I’ve had several since I was a CHILD! I’m digging for answers but strangely I don’t feel desperate…I don’t know maybe it’s because I am so used to it. (ps) the music was good but >> it hurt my head because of FMS~!

FIBROMYALGIA AWARENESS
Lanesteepee
Comment on FIBROMYALGIA AWARENESS (May 19th, 2011 at 18:13)

Your Wrong people…
It is a Disease…
It distroys all of you…
The only symtom I didn’t see is the headaches
The terrible headaches..with blood..
as I throw up-toss my cookies
a nice way 2 say it..
And with the headache is the total body shut down..where I can’t move even my head…Lane*
Lanesteepee
Comment on FIBROMYALGIA AWARENESS (May 19th, 2011 at 18:38)

Look in your state with the Dept of Health-there you’ll find you can sign up for thr Crippled Childrens Program,if gas needed,go to Unitedway 4 it,,a volcher they will give..so you can go.the only Dr.I know is Dr.Mathew Wallack,OceanSprings,MS 228-818-6550
He’s mine.Lane*
Lanesteepee
Comment on FIBROMYALGIA AWARENESS (May 19th, 2011 at 18:41)

The perfect song..to a disturbing disease
I’m taking care of 2 lil ones
What about them..it’s not fair to them
I’m a cripple..I finally said it..it’s true
It’s true..I’m fucking not ok
I hurt everyday
I have all symtoms you show but around 2
Blood comes out of me when I have a headache
once a month
I feel like I’m DYING..I probably am..Lane*
BunnyGrrrl666
Comment on FIBROMYALGIA AWARENESS (May 19th, 2011 at 18:50)

THANK you for putting this video out! I know I am not alone…although it feels like it sometimes.

Keep it up!

Gotta go lie down now…
ufarted
Comment on FIBROMYALGIA AWARENESS (May 19th, 2011 at 19:00)

im 14 and have Fibromyalgia. its so hard to live with. my meds dont work, my family dont understand, and it makes you very lonely. feels like i’ve lost my childhood.
the support from the health service is rubbish. nobody wants to know because im a child and there is no funding for children with it.
Gentle fibro hugs to all affected,
lucy x

FIBROMYALGIA AWARENESS

25 responses to FIBROMYALGIA AWARENESS

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